August 9, 2007

It’s All a Matter of Perception

What on earth do I mean by that? What is perception? All I know is that perception is reality. How many times have we heard that? And how often do we think of that when we’re in the medical environment? Probably not as often as we should…..

I was having lunch with a good friend and his wife (whom I’ve gotten to know fairly well in the past 2 years). She told me about her encounter with a new doctor recently for a sinus infection. She was adamant when she simply stated "I know enough about what’s going on in my body that by the time I go to the doctor, I just want them to give me the drugs I need." My internal reaction to that was very disconcerting. I understood what she was saying but my doctor-instinct was horrified - I know I’m telling alot about myself :-)

I wanted to explain to her that sometimes she might not know exactly what was wrong with her because "after all, you’re not medical" but i restrained my tongue for once, knowing that what she believed was, in fact, reality to her - and therefore, she probably did know what she needed.

I recalled a very sad case where a mother did not want to take her twin daughters home from the ER because they did not seem "better" to her after their asthma treatment. The ER doctor (not me, thank goodness) told her that the girls were not wheezing so they "must" be better. So, reluctantly mom took them home. The outcome was not good - one of the girls ended up dying. I tell this not to be morbid but to emphasize to patients that they really do know their bodies better than anyone (and to remind the physicians to listen to the patients and pay attention). I learned such a valuable lesson that night, nearly 28 years ago - and I think that’s what held my tongue in abeyance with my friend’s wife.

The point is that doctors and patients have different perspectives and therefore the perception of each is most likely 180 degrees apart. Each of us has to ask for clarification or offer it if we want to be understood by the other - and if we’re not understood, we’re in deep trouble.

Doctors - throw away your judgments and open up your ears AND your minds.

Patients - stick up for yourself and make sure your doctor hears you and where you’re coming from. And then make sure you understand what he’s saying.

Perception really is reality

Til next time…..

Terrie

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August 27, 2007

Three Signs of a Stroke

This is important information on strokes from Harvard Health Beat

3 Warning Signs of Stroke

You know the signs of a stroke. Or do you? You’d probably recognize the classic symptoms, such as sudden weakness on one side of the body or blurred vision, but often the signs are much less obvious. A crushing headache may come on without warning. Your face may feel numb. You may have inexplicable trouble speaking or following what people say.

How to tell when someone’s having a stroke

  1. Crooked smile. Have the person smile or show his or her teeth. If one side doesn’t move as well as the other or seems to droop, that could be sign of a stroke.
  2. Arm drift. Have the person close his or her eyes and hold his or her arms straight out in front for about 10 seconds. If one arm does not move, or one arm winds up drifting down more than the other, they may be having a stroke.
  3. Slurred speech. Have the person say, “You can’t teach an old dog new tricks,” or some other simple, familiar saying. If the person slurs the words, gets some words wrong, or is unable to speak, that could be sign of a stroke.

Knowing all the warning signs of a stroke may one day save your life and well-being. That’s because the faster you recognize the symptoms, the sooner you can get medical help. And prompt treatment is the key to shielding your brain from a stroke’s damage and sparing you serious disabilities such as paralysis, speech impairment, and dementia.

Every 45 seconds, someone in the United States has a stroke. Stroke is the third leading cause of death in the United States and other industrial countries, trailing only heart disease and cancer. In the United States, about 700,000 people have a stroke each year. If you have a stroke, the risk of dying from it increases with age: 88% of deaths from stroke are in people 65 and older. About two-thirds of people who have a stroke have some resulting disability and require rehabilitation.

The odds of having a stroke more than double for each decade after age 55. Two-thirds of strokes involve people over 65. Men and women are about equally likely to have a stroke, but women have a greater risk of dying from one. Race is another risk factor. African-Americans, for example, are almost twice as likely to suffer a stroke as are whites.

Although you can’t change your age or race, you can take steps to reduce other risk factors for stroke, especially ischemic stroke. The most common risk factors for both ischemic stroke and TIAs (transient ischemic attacks, or "mini strokes") are high blood pressure (hypertension), diabetes, unhealthy cholesterol levels, and obesity. All of these factors affect the health of your blood vessels — increasing the risk not only of stroke, but also of heart disease. That’s why medications and other steps you take to reduce the risk of an ischemic stroke will also benefit your heart.

Some types of hemorrhagic strokes are more likely to occur in people with chronic high blood pressure. But other types of hemorrhagic strokes seemingly strike out of the blue. Although abnormal blood vessel conditions such as an aneurysm (a bubble in the blood vessel wall that could rupture) or an arteriovenous malformation (an abnormal tangle of blood vessels) increase the risk, these conditions may only be discovered inadvertently while you are undergoing testing for something else or may not be discovered until a stroke occurs.

Fortunately, medicine has made considerable strides in understanding how to treat and prevent strokes. Medical imaging devices now enable medical teams to begin to diagnose a stroke accurately within minutes. Large studies have clarified which medications and other treatments are best for which patients. For those who need rehabilitation, experimental techniques are showing promise in helping patients make better progress than was possible even just a few years ago.

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August 15, 2007

Make the Most of Your 15 Minutes

 

Make the most of your 15 minutes: how to make every second of you doctor’s visit count

So you only have 15 minutes with your doctor. Learn to make the most of every second. Try these techniques and see how much time you save - save for clarification and questions.

If you’ve kept up with your "index card system" you’re one step ahead of the game. You can read from the cards or give them to the doctor - the cards have your list of medical problems and your medications.

Keep the symptom diary and write out the list of symptoms, time of onset and any changes since they began. Practice talking about your symptoms ahead of time. Solicit the help of a spouse or friend to listen to you. Have that person practice looking away from you and looking at you so you experience both methods of exposure and you can get more comfortable talking about embarrassing symptoms to another person.

Remember to just list them with minimal conversational tone. That saves a ton of time.

Bring paper and a pencil so that you can take notes as the doctor asks you questions or says things you’re not sure of. Tell the doctor early on that you may need to interrupt to adequately understand what he’s asking of you or what he’s telling you. If you say this and ask "permission", you’ll get off on the right foot. But keep your notes anyway. While you’re waiting for the doctor, jot things down that you think of as you’re sitting there. After the doctor’s been in there, write down questions. Ask the nurses if you have the opportunity when they come in. Ask the nurses how to approach the doctor with questions if they can’t answer them.

Consider bringing a tape recorder- ask the doctor if you can record the encounter so that you don’t have to worry about misinterpreting what he said. Explain that you want your spouse to know what went on and "what the doctor said". You can even make a joke of it with him because I’m sure he’s heard many times before that the patient has problems remembering enough to satisfy the spouse.

Write, write, write. If you have chronic problems, you should get a stenographer’s pad and label that as your doctor pad. Use it to record your symptoms and take it with you to put your notes in. This way it’s always available for reference and you don’t have to worry about small pieces of paper and worrying about losing them.

Stop worrying about whether you’re saying the right thing or not or whether you’re answering questions correctly. Just say what comes to mind. There is no answer the doctor is looking for - he wants to hear what’s going on with you.

Don’t worry about whether the doctor looks at your or seems friendly. This will distract you from the purposes of your visit - to relay your symptoms accurately and succinctly and to receive information back. That should be your only focus.

Focusing on these two purposes will help you make the most of your time - those precious 15 minutes will seem a lot longer.

Hope this helps!

 

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July 31, 2007

What the Heck is Non-Compliance?

Excellent article on compliance (following your doctor’s directions) and what influences it 

Most people follow only half of their doctor’s advice. The half they don’t follow often means the difference between a successful treatment and a lingering illness or even death. Find out what you can do to get the most out of your health care. It is so common for patients to disregard their doctor’s advice that there is a term for it in medical circles: Noncompliance. In fact, numerous studies and countless seminars and educational materials have been dedicated to solving this problem. A noncompliant patient is one who simply forgets to take medications on time, misunderstands the directions, cannot make the lifestyle changes required for certain treatments or simply ignores medical advice. Such neglect often has tragic consequences. It is estimated that 125,000 people with treatable ailments die each year simply because they do not take prescribed medications properly or they skip them altogether.

The blame for noncompliance, however, does not lie entirely with the patient. Health care professionals frequently fail to take the time to clarify a treatment, make sure the patient understands why it’s important to follow the plan precisely, explain possible side effects, or ask if a patient’s lifestyle might interfere with the therapy so that it can be customized.

Ideally, a patient and doctor should work together as a team to ensure the most effective medical care. But it doesn’t always work out that way. So don’t assume your health care provider is giving you all the pertinent information. Whenever treatment is prescribed–even if it’s a simple course of antibiotics–make sure you have all the facts, including the possible results of not following through with your doctor’s recommendations.

Why Patients Don’t Comply

Often, people do not follow their physician’s instructions because they don’t have adequate information regarding their condition or medication. Other reasons for noncompliance:

  • Symptoms disappear before treatment is finished. Many patients discontinue medications or other forms of therapy as soon as they feel better, even though the healing process is not yet complete. This is particularly true with antibiotics.
  • The treatment causes more symptoms than the illness. Many medicines cause uncomfortable side effects, so when patients have disorders such as hypertension, which have few or no discernible symptoms, it is hard for them to see the benefit of taking a drug that makes them feel worse. For the same reason, noncompliance is very high when medication is prescribed to prevent an illness from developing.
  • "It can’t happen to me." Some patients with threatening health problems, such as high blood pressure or high blood cholesterol, refuse to take the necessary precautions because they believe heart attacks only happen to "other people."
  • Life-style changes are too hard to make. Many patients have a difficult time making prescribed life-style changes, such as quitting smoking, exercising regularly and changing their eating habits.
  • Patients come to identify the treatment with their illness. Some people hate feeling dependent on drugs, so they stop taking their medication to deny they are sick. Others stop taking medicine to see if they are "cured" yet.
  • Patients adjust the dosage of their medication without consulting their physician. Many people, particularly those with chronic ailments, feel a need to take control of their problem. And they try to do so by taking control of their medication dosage.
  • The cost of treatment is too high. Many prescription drugs are extremely expensive.
  • Work and family demands interfere with following the therapy correctly. Due to hectic schedules, people sometimes find it hard to stick to their treatment regimen.

    What You Can Do to Maximize Your Treatment

    The most important factor in making the most of your medical care is good communication between you and your doctor. Here are some practical steps you can take to accomplish that goal:

    1. Tape record or write down what the physician says.

    2. Make sure you understand the prescription schedule, and let the doctor know if you think your activities will interfere with it. Call your physician if you find that you cannot take your medication at the appropriate times. Together, you can work out a schedule that meets your needs. (See Make the Most of Your Medications.)

    3. Ask what you should do if you miss a dose of medication or a therapy session and whether you should discontinue treatment when you feel better.

    4. Let your doctor know if you have had bad experiences in the past with any portion of the prescribed treatment plan and if you are currently being treated for another condition. Find out how to manage both treatment plans simultaneously.

    5. Find out what side effects you should expect and which aren’t normal and should be reported to your doctor.

    6. Ask for a referral to a support group that deals with your ailment. If your therapy calls for lifestyle changes you feel will be hard for you to make, ask for a referral to a professional who can help, such as a dietitian for changes in your diet or a smoking program for quitting smoking.

    7. Don’t be afraid to ask the doctor to simplify instructions by using less technical terms or giving you concrete examples. If your doctor seems impatient with your questions or brushes them off, explain that it is important to you to understand the recommendations clearly because you want to be able to follow them. If your physician still is not responsive, you may want to consider finding another doctor who appreciates an involved patient.

    8. If you cannot afford the prescribed drug, ask your doctor about manufacturer aid. Most major drug companies now have programs to give drugs to patients who either don’t have insurance or the means to pay for their medications. The details of such aid vary widely depending on the manufacturer, but all of them require that the doctor put in the application for you

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    July 8, 2007

    What The Heck is Non-Compliance?

    Excellent article discussing compliance (following directions) and who’s responsible when it’s lacking - and what can be done about it

    Most people follow only half of their doctor’s advice. The half they don’t follow often means the difference between a successful treatment and a lingering illness or even death. Find out what you can do to get the most out of your health care. It is so common for patients to disregard their doctor’s advice that there is a term for it in medical circles: Noncompliance. In fact, numerous studies and countless seminars and educational materials have been dedicated to solving this problem. A noncompliant patient is one who simply forgets to take medications on time, misunderstands the directions, cannot make the lifestyle changes required for certain treatments or simply ignores medical advice. Such neglect often has tragic consequences. It is estimated that 125,000 people with treatable ailments die each year simply because they do not take prescribed medications properly or they skip them altogether.

    The blame for noncompliance, however, does not lie entirely with the patient. Health care professionals frequently fail to take the time to clarify a treatment, make sure the patient understands why it’s important to follow the plan precisely, explain possible side effects, or ask if a patient’s lifestyle might interfere with the therapy so that it can be customized.

    Ideally, a patient and doctor should work together as a team to ensure the most effective medical care. But it doesn’t always work out that way. So don’t assume your health care provider is giving you all the pertinent information. Whenever treatment is prescribed–even if it’s a simple course of antibiotics–make sure you have all the facts, including the possible results of not following through with your doctor’s recommendations.

     

    Revealing Statistics

    The following statistics illustrate how widespread noncompliance really is among Americans:

    Only 55 percent of tuberculosis patients, 48 percent of diabetics, 46 percent of asthmatics, and 42 percent of glaucoma patients use their medicines correctly.
    From 14 to 21 percent of patients never even fill their original prescriptions.
    10 percent of adolescent pregnancies result from non-compliance with birth control medication.
    60 percent of all patients cannot identify their own medicines.
    From 30 percent to 50 percent of all patients ignore or otherwise compromise instructions on how to take medication.
    Nearly one-fourth (23 percent) of nursing home admissions are related to improper self-administration of medicine.
    From 12 percent to 20 percent of patients take other people’s medicines.
    The cost of hospital admissions is an estimated $8.5 billion annually just for patients who do not take their medications as prescribed.

    (Sources: The Food and Drug Administration and The National Council on Patient Information and Education)

    Why Patients Don’t Comply

    Often, people do not follow their physician’s instructions because they don’t have adequate information regarding their condition or medication. Other reasons for noncompliance:

  • The treatment causes more symptoms than the illness.
  • "It can’t happen to me."
  • Life-style changes are too hard to make.
  • Patients come to identify the treatment with their illness.
  • Patients adjust the dosage of their medication without consulting their physician.
  • The cost of treatment is too high.
  • Work and family demands interfere with following the therapy correctly.
  • Many medicines cause uncomfortable side effects, so when patients have disorders such as hypertension, which have few or no discernible symptoms, it is hard for them to see the benefit of taking a drug that makes them feel worse. For the same reason, noncompliance is very high when medication is prescribed to prevent an illness from developing.

    Some patients with threatening health problems, such as high blood pressure or high blood cholesterol, refuse to take the necessary precautions because they believe heart attacks only happen to "other people."

    Many patients have a difficult time making prescribed life-style changes, such as quitting smoking, exercising regularly and changing their eating habits.

    Some people hate feeling dependent on drugs, so they stop taking their medication to deny they are sick. Others stop taking medicine to see if they are "cured" yet.

    Many people, particularly those with chronic ailments, feel a need to take control of their problem. And they try to do so by taking control of their medication dosage.

    Many prescription drugs are extremely expensive.

    Due to hectic schedules, people sometimes find it hard to stick to their treatment regimen.

    What You Can Do to Maximize Your Treatment

    The most important factor in making the most of your medical care is good communication between you and your doctor. Here are some practical steps you can take to accomplish that goal:

    1. Tape record or write down what the physician says.

    2. Make sure you understand the prescription schedule, and let the doctor know if you think your activities will interfere with it. Call your physician if you find that you cannot take your medication at the appropriate times. Together, you can work out a schedule that meets your needs. (See Make the Most of Your Medications.)

    3. Ask what you should do if you miss a dose of medication or a therapy session and whether you should discontinue treatment when you feel better.

    4. Let your doctor know if you have had bad experiences in the past with any portion of the prescribed treatment plan and if you are currently being treated for another condition. Find out how to manage both treatment plans simultaneously.

    5. Find out what side effects you should expect and which aren’t normal and should be reported to your doctor.

    6. Ask for a referral to a support group that deals with your ailment. If your therapy calls for lifestyle changes you feel will be hard for you to make, ask for a referral to a professional who can help, such as a dietitian for changes in your diet or a smoking program for quitting smoking.

    7. Don’t be afraid to ask the doctor to simplify instructions by using less technical terms or giving you concrete examples. If your doctor seems impatient with your questions or brushes them off, explain that it is important to you to understand the recommendations clearly because you want to be able to follow them. If your physician still is not responsive, you may want to consider finding another doctor who appreciates an involved patient.

    8. If you cannot afford the prescribed drug, ask your doctor about manufacturer aid. Most major drug companies now have programs to give drugs to patients who either don’t have insurance or the means to pay for their medications. The details of such aid vary widely depending on the manufacturer, but all of them require that the doctor put in the application for you

  • Symptoms disappear before treatment is finished.
  • Many patients discontinue medications or other forms of therapy as soon as they feel better, even though the healing process is not yet complete. This is particularly true with antibiotics.

     

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    July 5, 2007

    Armed by the Internet….

    SAN FRANCISCO (MarketWatch) — Judy Feder is grateful for having what she calls a rare rapport with her oncologist: the ability to discuss material she finds on the Internet that could alter her treatment course and quality of life.

    Feder, 50, a public-relations professional in White Plains, N.Y., was diagnosed with breast cancer in 2001. She began approaching her doctor with articles, studies and ideas shortly thereafter.

    Recently, she found a small body of evidence saying that one of her chemotherapy drugs, Xeloda, would be as effective if used for seven days followed by seven days off, as opposed to a 14-day stretch that precedes a break. The difference would spare her some noxious side effects, she said.

    Her doctor was receptive. "She was going to go that route anyway but she said ‘I’m really glad you brought this in because I don’t have time to read everything,’" Feder said. Though her oncologist doesn’t agree with all her inquiries, Feder’s input — bolstered by online patient support groups — helps her take charge of her own care.  

    "A couple of years of ago there was this default that doctors would say, ‘Oh, there’s so much bad information out there on the big nasty Internet.’ But I think people have gotten a lot more sophisticated" about finding reliable, credible resources, she said. "I don’t think doctors can use that excuse anymore, that if you got it on the Internet it’s not valid."

    Feder’s experience underscores how the doctor-patient relationship is changing from one that pits a passive patient against a paternalistic doctor to more of an active collaboration. Some of the shift is driven by financial need. With more cost-sharing and high-deductible health plans emerging in employers’ benefits mix, patients are under pressure to take more responsibility for their care and its costs. 

    "Consumers are forced to be more empowered, whether it’s higher copays for physicians or having to make decisions about things," said Mark Bard, president of Manhattan Research, a health-care market research firm in New York. "They need access to information on the front line, and increasingly physicians are being shown that information." 

    Nearly two-thirds of physicians say the trend of patients coming in armed with online information is positive, up from 62% in 2004, according to a recent study from Manhattan Research. The referrals increasingly work both ways. Slightly more than half, or 52%, of 1,300 U.S. doctors said they recommend health-related Web sites to their patients.

    Watching for pitfalls
    Still, not all doctors welcome patients’ initiative and may see it as threatening to their expertise. Specialists such as neurologists, surgeons and cardiologists tend to be less enthusiastic than primary-care doctors and oncologists, Bard said.
    What’s more, some doctors worry that consumers will try to self-diagnose and may be led astray by a false sense of security or unwarranted anxiety.
    "There are cases where it can be detrimental and confusing to both patients and physicians," said Dr. Rick Kellerman, a family doctor in Wichita, Kan., and president of the American Academy of Family Physicians, whose members often point patients to its Web site, www.familydoctor.org.
    Online research tends to benefit patients with certain conditions such as earaches, sore throats or even high blood pressure, he said. "We want patients in those situations to be well-educated."
    But where the Web falls short is when a patient has a vague symptom or undifferentiated problem that could be caused by any number of ailments, Kellerman said, citing fatigue as an example. "Tiredness could be from thyroid problems, anemia, viruses like mononucleosis, diabetes. It could be a sleep disorder; it could be from depression."
    Once patients jump to a conclusion, doctors can have a hard time steering the conversation back to a productive inquiry, he said. "It sometimes takes a long time to get people back on track."
    While some patients will arrive with stacks of print-outs they want to discuss, most make judicious use of credible Internet material, which typically makes office visits run smoother, not longer, Bard said. "For more physicians than not, it’s adding some level of efficiency to their practice and generally improving physician-patient communication."
    Doctors need to help patients determine what information is relevant to their individual situation and point out material that may be tainted by conflicts of interest, said Dr. Vicki Rackner, a surgeon and president of Medical Bridges, a Seattle outfit that consults with employers on employee health-care matters.
    "There’s an awful lot of information that’s there to sell a product and sometimes it’s really hard to tell whose purposes are being served by having that information on the Internet," she said.
    The first step is for patients to understand how much information they feel comfortable having and whether their style is compatible with their doctor’s, Rackner said. "If they are the kind of person who feels more empowered if they’ve done more research and they bring in a file case and the doctor says, ‘Oh, when did you go to medical school?’ 

    That’s not a good match."

    Where it gets less clear-cut is when patients can’t find answers from the medical establishment, she said. "There are people who go round and round and round and truly elude diagnosis or come to a conclusion that some doctors don’t believe in, like chronic fatigue syndrome."
    Conditions that tend to strike women in particular can cause mysterious symptoms that leave patients in limbo for years before they get a solid diagnosis.
    "The classic is lupus," Rackner said. "So what do you do? Do you suffer in silence, go to see another doctor? Most people go on the Internet, and the Internet is not set up as a diagnostic tool so they get frustrated. I have a lot of empathy for them, but what they need is a good doctor."
    Spurring behavior change
    Health information has been one of the Web’s most popular attractions for some time, and the offerings keep growing. Many existing sites are enhancing their tools and forming partnerships to better serve users and fend off competition from high-profile entrants such as Steve Case’s recently launched Revolution.com. See previous Vital Signs.
    In the first three months of 2007, 55.3 million U.S. Internet users visited health-related sites, a 12% increase from the same period last year, according to comScore. WebMD Health led the category, followed by the National Institutes of Health site, NIH.gov, MSN Health and Yahoo Health.
    Patients increasingly are going online not only to research information about their symptoms and conditions but to check a doctor’s ratings on sites such as HealthGrades.com, Best Doctors and Checkbook.org.
    Physicians are starting to take ratings more seriously to improve their own practices, said Dr. Atul Gawande, a Harvard cancer surgeon and author of "Better: A Surgeon’s Notes on Performance."

    "If we’re more transparent about our results, that gives people better opportunities to go to places where they know they get better results, but it also puts pressure on us to think harder about how we get those better results," Gawande said.

    Doctors’ groups such as the American Academy of Family Physicians, the American Heart Association and the American Society of Clinical Oncology provide patient-friendly Web sites that answer common questions, connect patients to other resources and remind them what to ask their doctors.
    With the help of the Internet, patients are more aware of the portfolio of treatments for heart disease, said Dr. Clyde Yancy, medical director of the Baylor Heart and Vascular Institute in Dallas.
    Patients often resist making lifestyle changes and lowering their risks, he said, but those who use Web sites such as the American Heart Association’s Heart Profiler increase the chances they will comply with treatments.
    "The next time you interface with that patient, they may have an understanding and may even have a sense of urgency," Yancy said. "That’s a wonderful day in the office because you can really make some headway."
    Diane Blum, editor in chief of the American Society of Clinical Oncology’s Web site called People Living with Cancer, said reputable sites that suggest questions to ask the doctor or help patients locate clinical trials perform a vital service.
    PLWC.org now details 100 cancer diagnoses, up from 25 when it launched five years ago. It has expanded offerings on coping with cancer and survivorship as more people are able to treat it as a chronic condition.
    As more people go online for health information, the shift in expectations between doctors and patients is likely to be permanent, Blum said.

    "Doctors are getting used to and valuing the more participatory and educated patient," she said. "With the baby boomer generation aging and moving into the prime years of cancer diagnosis, you’re going to see more of this interaction." 

    Kristen Gerencher is a reporter for MarketWatch in San Francisco.

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    June 30, 2007

    The Index Card Solution

    Another one of my articles - on SeniorNet.org

    The Index Card Solution

    by Dr. Terrie Wurzbacher
    June 2007

    Sometimes the simplest things can impact your life in ways you never could imagine. Using index cards to help communication with your doctor is one of those simple things. You can use the index cards in various ways.

    You should always have an index card where you record your list of medications and the dosages and how many times a day it’s taken. Write this in pencil so you can adjust it when the dosages are changed. All medical personnel will be so appreciative of this one thing because the last thing they want to hear when they ask “what medicines do you take” is “well, there’s a little blue pill but I don’t know what it’s for. And the orange tablet and a green capsule.” Not knowing your medications or having this card can actually be detrimental to your health because often your symptoms might be caused by or exacerbated by your medicines.

    Another use for an index card is to record your medical problems (e.g. high blood pressure, GERD, etc). Use the back (or another one) for your procedure history. Put the procedure, the reason you had it and the results (e.g. colonoscopy 2004 – routine – polyps or mammogram 2006 – routine – normal, etc).

    If you’re having a procedure done and have concerns about some of your medical problems, but are worried that the surgeon or anesthesiologist won’t have time to listen to your issues, write them down on an index card. Give the card to the specialist you need to discuss things with. For example, if you’re having surgery and are going to have general anesthesia and are worried about your bad neck being bent back to put the tube in your throat, write it on the index card. If you’re scared how the anesthesia drugs will affect you, write that down too. Be concise – for example: “Neck arthritis – positioning head” on one line and then on the next write “Interaction of anesthesia drugs with mine” or something similar. Be sure to use separate lines.

    Use an index card to remind yourself of questions for your doctor. Use keywords or phrases. Make sure you have it out when you start to ask questions. Tell the doctor up front that you have questions.

    Another use is to briefly write all your symptoms. That way you won’t forget something while the doctor is talking to you. You can even give him the list. You can take notes on an index card too. This might help you remember things the doctor tells you.

    There’s a myriad of uses for an index card (and you can use 4 x 6 cards if you have a lot to write or have trouble seeing). The point is that it’s convenient and a great memory cue to help you at a time where it’s easy to become flustered. The more information you have at your hand, the more powerful and knowledgeable you become with your doctor.

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    June 29, 2007

    Make The Most of Your 15 Minutes

    This is cool. My article got published on MySeniors.com . It was also in HealthNewsDigest.com

    Your Doctor Said What?

    Make the Most of Your 15 Minutes

    By: Dr. Terrie Wurzbacher DO 

    Doctor-Patient Communication What your doctor does (and doesn’t) need to know

         Ok, you’ve got your appointment scheduled. You’ve kept your symptom diary. Now what? What is it your doctor needs to know – and conversely, what is it he doesn’t need to know? After all, you’ve only got those infamous 10 minutes to get everything accomplished – tell your problem, be examined, get a diagnosis, and ask your questions.

        What does the doctor need to know? Just about everything – but not in the conversational manner you’re used to. What’s your predominant problem and how long have you been experiencing it. Have you had this before – sometime in the past perhaps? If so, what was your diagnosis (if you went to have it checked)?    

        In addition, you should list the associated problems – pain, weight loss, nausea, vomiting, urinary symptoms, loss of appetite, cough, fever, chills, headaches, etc. It’s important to make sure you separate the two issues.

        What’s the character of the symptoms? Are they intermittent? Or constant? Are there periods of time when you don’t have any symptoms and feel pretty good?

        Have there been any changes in severity or location? Changes can indicate a lot about what’s going on.

        Why did you decide to come see the doctor now? Was it that it became intolerable? Was it that you finally realized it wasn’t going to go away?

        Remind the doctor about your past medical problems and your current ones. Take your index card and read off of it to him. Often times, your current symptoms may be related to your other problems or to their treatment.

        Likewise use your other index card – the one with your medicines listed on it.

        Tell him if you’ve had any other problems that you’ve seen another doctor for. Have your medicines changed? Have you run out of your medications? If so, when? If you’ve stopped your meds because of your symptoms, tell him when you stopped them.

        Have you been taking any herbal medications or other naturopathic remedies?

        What’s changed in your daily living or activities or abilities? Do you get out of breath faster, are you unable to walk up your stairs or go for your usual walk since you got sick?

        What doesn’t your doctor need to know? He doesn’t need to know all the details that go along with you telling your story. This is not a good way to describe your problems “I felt worse than when cousin Charles died” or “It started 3 weeks ago on a Friday and then that whole weekend we were at a high school reunion – you know my 30th – it wasn’t bothering me as much except when I went to bed. The long car ride made me more carsick than usual though. When we went to dinner with the Sullivans I wasn’t able to eat as much but I really didn’t have any bowel problems.”

        Eliminate the natural conversational patterns to get more out of the time you have with the doctor. Short and to the point makes it easier for him to hear the pertinent points.

        The doctor doesn’t need to know what you think the diagnosis is – unless you’ve had this same condition/symptoms diagnosed by a physician before. If you try to convince the doctor it’s something, then you may mislead him or lead him down the wrong path.

        Give your doctor your story in bullet points and don’t elaborate unless asked. Practice and write things down and you’ll do great!

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    Getting What You Need From The Health Care System

     This is about heart disease from About.com but the info is still pertinent

    Getting What You Need From the Health Care System

    There’s nothing more frustrating, or more dangerous, than having to solve your own medical problems. No matter how many hours you spend searching the Internet, listening to the accumulated wisdom of your Great Aunt Hilda, or engaging in games of Twenty Questions with taciturn medical personnel, you can never be sure you’ve got the right answer. 

    It’s not supposed to be like that. When you’re sick and need help, you’re supposed to be able to rely on a doctor - a doctor who is knowledgeable, who really cares what happens to you, and who will leave no stone unturned in seeing that you get exactly what you need.  Unfortunately, having such a "model" doctor is becoming rare. Patients are on their own much more often, and to a much greater extent, than they used to be - and it’s getting worse all the time.  

    If you’ve read Part 1 of this series, you’re acquainted with our contention that patients are feeling abandoned by the health care system because they really have been abandoned; and that (because widespread covert rationing is systematically destroying the doctor-patient relationship,) the abandonment of patients is happening by design rather than by chance. But even if you don’t buy DrRich’s explanation of the problem, the problem still remains. When you’re sick and find yourself engaged in a hostile health care system, you need somebody in your corner who knows what she’s doing, and who cares about you.  And that somebody is supposed to be your doctor.

    Choosing the right doctor for yourself, and nurturing a good relationship with him, is probably the most critical step you can take in becoming an effective patient. With the right doctor at your side, the path to good health care becomes clear and wide. Without that doctor, you’re lost and alone in the enchanted forest.  Accordingly, this article discusses two aspects of dealing with your doctor: Choosing the Right Doctor, and The Care and Feeding of your Doctor-Patient Relationship.

    Rule # 1. We ought to begin with the first rule of choosing a doctor, to wit: You hired him; you can fire him.

    Choosing a doctor is different than, say, choosing a car. When you buy a new car, you can shop around to your heart’s content, but once you plunk down your money and bring that baby home, you’re pretty much stuck with it. If it’s not everything you hoped it would be, you can’t just get rid of it - why, it lost 50% of its original value the minute you drove it off the lot. Besides, it’s not life and death, it’s just a car. So if your new car turns out to be a disappointment, you’ll usually shrug your shoulders and resolve to live with it for a few years, at least until you can justify buying another one. 

    It’s different with doctors. For one thing, it’s harder to shop around before you make your move. For another, starting with a new doctor doesn’t require an up-front investment of tens of thousands of dollars. Early on, all you’ve invested is some time and inconvenience. And finally, choosing the right doctor potentially is a matter of life and death.

    Many patients have the same attitude when they’re dissatisfied with their doctors that they would have if they were dissatisfied with a car - "Oh, well, guess I’ll just have to live with it." This is the wrong attitude, since, indeed, in this case you may not live with it. Doctors are serious business.  Choosing a doctor is an important decision, but it’s not an irreversible one. It’s not uncommon for discerning patients to run through two or three doctors before finding the right match. And there’s nothing wrong with doing it that way. So if you’ve tried a new doctor and you’re not satisfied with him, get another one. Remember: You hired him; you can fire him.

    The most important factor in choosing a doctor: Communication.  If you can’t communicate well with your doctor, you’re in trouble. This is the person, after all, who will need to understand your wishes and values regarding your health care. She is the one who will need to explain to you, so that you can understand it, the nature of your medical problems - the causes, the testing that may be needed, the potential treatments, the pros and cons of the various therapeutic options, and why she’s recommending one option over the others. She’s also the one who has to convince your insurance carrier that the course of action you and she have decided upon is the right one, that it’s medically necessary, and that they - the insurance carrier - ought to pay for it. Communication has always been important in medicine. Now it’s vital.

    Is your doctor really listening to what you are saying? Does he show he understands your concerns by responding meaningfully to them? When he explains medical issues to you, does he make them understandable? Does he have more than one way of explaining a difficult concept? Is he patient with you, waiting for you to grasp what he’s saying, or does he try to embarrass you into saying you understand, with shakes of his head or rolling of his eyes? Do you like him, and more importantly, does he seem to like you? (This may become very important when it’s time for him to go to bat for you.) 

    The inability to communicate effectively with your doctor is sufficient reason to move on to someone else. Without communication, you’ve got nothing.

    The second most important factor: Does your doctor know what she’s doing?

    Sometimes its hard to know for sure how knowledgeable your doctor is. But at a minimum you should check to see if your doctor is board-certified in her specialty.  At least two sources can help. The Directory of Physicians in the United States and the Official American Board of Medical Specialties Directory of Board Certified Medical Specialists list doctors who are board-certified. These books are available in most public libraries, and your doctor should appear in them.

    Does your doctor seem smart to you? When you ask a question about one of you health problems, are the answers quick, logical, and cogent? Do the answers jibe with what you know to be true? Are her answers given confidently, or is she dissembling? Keep in mind that it’s often fine for a doctor to answer, "I don’t know," as long as she promises to find out the answer, and then follows through on that promise.

    For specialists you will be seeing only once or twice, or who you are going to for some complex or esoteric medical procedure, their experience, knowledge and ability are often much more important than how well they communicate. If I’m having a heart valve surgery, I care much less about how warm and fuzzy the surgeon makes me feel during the pre-op interview, and much more about how many similar procedures she’s performed, and what have been her surgical results.

    The third most important factor:  Is your doctor respected by his peers?

    Doctors watch each other perform in the trenches, and in general, are pretty good at sizing each other up. If you can get a recommendation on a doctor from another doctor you know you can trust, that’s likely to be a good starting point.  If you know some doctors, ask them what they think. Would they send their own patients to your doctor? Or, better yet, do they send their own family members to him? Do they use him as their own doctor?  And, if your doctor is invited to participate in the training of medical students or medical residents at the local university, that’s a reasonably good sign that he’s held in high regard by his peers.

    Other factors to consider. 

    • Where is your prospective doctor located? Is her office convenient to you?
    • Which hospitals does she have admitting privileges to? Are these hospitals convenient to you, and do the specialists there (since the specialists in those hospitals are the ones she will be referring you to) have a good reputation?
    • What are her practice arrangements? Who covers for her when she is away?
    • Is her age, gender or race important to you?
    • What is her office staff like? Are they reasonably competent, friendly, and helpful, or is their main job to keep you out?
    • What are her office hours and office policies?
    • What insurance plans does she participate in? This may be especially important if you are likely to be changing jobs (and thus changing insurance carriers.)

    Where to look.

    Start with your family and friends - people whose opinions you trust. Find out who their doctors are, and whether they are happy with them. Find out why they like them.  Also, talk to medical specialists, and especially to nurses and (if you know any), physicians’ assistants.  See which doctors they respect and admire, and why.

    Another place you might consider looking is www.bestdoctors.com.  This is a listing of American physicians chosen through a survey of other American physicians.  For a doctor to make the list, a large number of physicians have to assert that they would want that doctor to take care of them or their family members if they were sick. Best Doctors is a business, however, and currently requires a $35 subscription fee.  A problem with Best Doctors is that it is sometimes weighted toward academic physicians, and there are potential drawbacks to academics - doctors often sing the praises of academics not because they are especially good doctors, but because they have published a lot, or are in positions of power. Some of the most famous university doctors are not especially good clinicians. The bottom line is that while you may find Best Doctors useful, it should by no means become your chief searching tool.  The large majority of excellent doctors in the U.S. are not listed there at all. If you strictly limit your search in this way you may be cheating yourself.

    Once you have made your list of doctors, check for them in the Directory of Physicians in the United States or the Official American Board of Medical Specialties Directory of Board Certified Medical Specialists in your public library to make sure they are board certified.  Finally, call the office of one or two of the doctors still remaining on your list. See what you have to do to get an appointment.  See whether the office personnel seem friendly and efficient, or whether they’re obstreperous and obstructive.  Remember that you may need to deal with these people fairly often, and that before you ever get in to see the doctor, you’ve got to get past them. And remember that the doctor’s front office is a reflection of his own personality.  If his receptionists and nurses are difficult to deal with, you’ve got to assume that the doctor likes it that way. 

     The remaining step is to pick one of the "finalists" on your list, and make yourself an appointment.  If after meeting with the doctor you decide this isn’t going to work out, remember Rule # 1.

    If you’ve read Part 1 of this series, you know that the traditional doctor-patient relationship is in deep trouble.  The problem, of course, is that the health care system simply can’t afford the traditional doctor-patient relationship anymore. There’s no way that HMOs, hospitals, insurance carriers, or federal regulators can allow doctors to continue directing the spending of health care dollars as if the only important consideration is the welfare their patients. In thousands of ways doctors are being coerced into giving the needs of each of these other parties a higher priority than the needs of their patients. So in becoming an effective patient, you’ve got to take the weakened state of the doctor-patient relationship into account.

    The effective patient’s strategy 

    Simply assuming that your doctor is always going to be acting in your best interests - no matter how good a doctor he is, or how ethical - is a big mistake.  The effective patient understands this, but she understands something else, too. She understands that her doctor (if she’s chosen her doctor wisely) deeply wants to honor the traditional doctor-patient relationship, since honoring that relationship is his first duty as a professional. She understands that, despite all the coercive pressure to the contrary, her doctor will occasionally go up against an HMO for the benefit of a patient. He needs to do this as a matter of professional pride - just to be able to live with himself. (The HMOs understand this, too. Letting the doctors win one now and then - only, of course, after putting up a stiff resistance - costs them some money, but in the long run keeps the doctors mollified. It keeps the doctors working, and it keeps them quiet. It’s just one of the costs of doing business.) The effective patient also understands that, as much as he may want to, her doctor cannot go to the wall for every patient, or for every issue that comes up for a given patient. The process would be too grindingly difficult, and fatal to his career. She knows that her doctor must choose his battles carefully.

    The effective patient understands all this, and nurtures her relationship with her doctor accordingly. She tailors the relationship in such a way that, when the chips are down, she is likely to be one of those her doctor will go to the wall for.  To be such an effective patient, consider following these three general strategies:

    Strategy 1 - Be empathetic.  Show that you understand the constraints under which your doctor is laboring, and adjust your expectations accordingly. Don’t be too demanding, especially regarding the small stuff. Show that you respect your doctor’s skills, and that having his skills working for you is worth a few minor inconveniences. After all, you make clear, you know how hard it is to be a good doctor these days, and you’re thankful he’s there for you despite everything. 

    Strategy 2 - Align your interests with those of your doctor. Remember: you and your doctor are in this together. He feels your pain, and you feel his. You both want the same things. You both want the patient (you) to get good health care; and you both want the doctor’s practice - and professional integrity - to thrive. So while you fully expect to get the care you need from your doctor, you will help him to deliver that care as efficiently and as cheaply as posible.

    You will not bother him needlessly, or thoughtlessly. You will make the most efficient use of your time with him. You will learn how his office operates, and cooperate with his office staff in minimizing interruptions and special requests. (For instance, inquire as to the best time to call the office with questions, or to speak with the doctor.) The main idea is: you are interested in making the doctor’s job as easy for him as possible, while still having your own vital needs served. 

    Strategy 3 - Become engaged in your own good health. Nothing makes doctors crazier than patients who completely neglect their own health, then expect their doctors to pull out all the stops for them when they get into medical difficulties. The fact is, your doctor simply cannot afford to vigorously advocate for every problem for every patient. This being the case, which patient is your doctor more likely to fight for when they get sick - the obese smoker who has made no visible effort to take care of himself, or the diabetic who has carefully tried to follow her difficult diet and drug regimens?  

    Maybe it isn’t fair, but it’s nonetheless true. If a doctor is considering stepping out of line and jeopardizing his own security to fight for his patient’s best outcome, you can be sure he’s more likely to reserve that action for a patient who’s fighting right at his side for the very same thing. 

    You greatly increase the likelihood that your doctor will go to the wall for you if you are fully engaged in maintaining your own good health. You need to stop smoking, lose weight, exercise, take an interest in disease prevention, and during your visits to your doctor, demonstrate how involved you are with your own health care. Make yourself into the kind of patient that doctors find it rewarding and fulfilling to fight for.

    Summary

    By understanding how and why the doctor-patient relationship is under fierce attack, you can "manage" your own doctor-patient relationship to make yourself a more effective patient. 
    Any doctor worth her salt will respond favorably to patients who seem to understand the duress she faces each day in the practice of medicine, who try to help her keep her head above water while she provides health care, and who take an active role in maintaining their own health. Patients like that are worth their weight in gold, and doctors try hard to provide them with the best health care they can possibly manage.

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    June 26, 2007

    The Patient-Physician Encounter

     What a great article from About.com - even though it’s primarily about arthritis, the concepts are exactly the same for every patient-physician encounter. Read about it.

    The Patient-Physician Encounter

    From Carol & Richard Eustice 

    The good physician treats the disease; the great physician treats the patient who has the disease ~ William Osler (Canadian Physician, 1849-1919) 

    The Patient-Physician Encounter 

    What do patients want from a medical encounter with a physician?

    In the thoughts of one physician (Delbanco,1992)

    • Patients want to be able to trust the competence and efficacy of their caregivers.
    • Patients want to be able to negotiate the health care system effectively and to be treated with dignity and respect.
    • Patients want to understand how their sickness or treatment will affect their lives, and they often fear that their doctors are not telling them everything they want to know.
    • Patients want to discuss the effect their illness will have on their family, friends, and finances.
    • Patients worry about the future.
    • Patients worry about and want to learn how to care for themselves away from the clinical setting.
    • Patients want physicians to focus on their: 
                        pain
                        physical discomfort
                        functional disabilities  

    The Relationship Between Patient And Physician 

    The relationship between patient and physician has been analyzed since the early 1900’s. Prior to when medicine was more science than art, physicians worked to refine their bedside manner, as cures were often impossible and treatment had limited effect.

    In the middle of the century when science and technology emerged, interpersonal aspects of health care were overshadowed. There is currently a renewed interest in medicine as a social process. A physician can do as much harm to a patient with the slip of a word as with the slip of a knife. 

    Instrumental And Expressive Components 

    The patient-physician encounter crosses two dimensions:

  • The "instrumental" component involves the competence of the physician in performing the technical aspects of care such as:

    • expressive
    • performing diagnostic tests
    • physical examinations
    • prescribing treatments
  • The "expressive" component reflects the art of medicine, including the affective portion of the interaction such as warmth and empathy, and how the physician approaches the patient.

  • 3 Common Patient-Physician Relationship Models

     #1) The Activity-Passivity Model - Not The Best Model For Chronic Arthritis

    It is the opinion of some people that the differential in power between the patient and physician is necessary to the steady course of medical care. The patient seeks information and technical assistance, and the physician formulates decisions which the patient must accept. Though this seems appropriate in medical emergencies, this model, known as the activity-passivity model, has lost popularity in the treatment of chronic conditions such as rheumatoid arthritis and lupus. In this model the physician actively treats the patient, but the patient is passive and has no control.

    #2) The Guidance-Cooperation Model - The Most Prevelant Model

    The guidance-cooperation model is the most prevalent in current medical practice. In this model, the physician recommends a treatment and the patient cooperates. This coincides with the "doctor knows best" theory whereby the doctor is supportive and non-authoritarian, yet is responsible for choosing the appropriate treatment. The patient, having lesser power, is expected to follow the recommendations of the physician.

    Part 2 of 2 - The Patient-Doctor Relationship Can Impact Success of Treatment

    3 Common Patient-Physician Relationship Models - 

    #3) The Mutual Participation Model - Shared Responsibility

    In the third model, the mutual participation model, the physician and patient share responsibility for making decisions and planning the course of treatment. The patient and physician are respectful of each others expectations and values.

    Some have argued that this is the most appropriate model for chronic illnesses such as rheumatoid arthritis and lupus, where patients are responsible for implementing their treatment and determining its efficacy. The changes in the course of chronic rheumatic conditions require a physician and patient to have open communication so as to determine the success of a treatment plan. 

    What Is The Optimal Patient-Physician Relationship Model For Chronic Arthritis? 

    Some rheumatologists feel that the optimal patient-physician relationship model is somewhere between guidance-cooperation and mutual participation.

    In reality, the nature of the patient-physician relationship likely changes over time. Early on, at the time of diagnosis, education and guidance is useful in learning to manage the disease. Once treatment plans are established the patient moves towards the mutual-participation model as they: 

  • monitor their symptoms
  • report difficulties
  • work with the physician to modify their treatment plan  

    The Efficacy Of Treatment 

    Arthritis is not a single disease. There are over 100 types of arthritis and related conditions. The effectiveness of treatment is largely dependent on the patient carrying out the directions of the physician. Treatment options for arthritis may involve: 

    Non-adherence to the physicians treatment plan does imply a negative outcome. In this regard, non-adherence suggests a complete failure to follow a prescribed treatment. The assumption here is that: 

  • the treatment is appropriate and effective
  • there is an association between adherence and improved health
  • the patient is able to carry out the treatment plan  
  • What Are The Effects Of An Effective Patient-Physician Relationship?

    What are the effects of an effective patient-physician relationship? When the PATIENT-PHYSICIAN RELATIONSHIP includes:

  • competence
  • communication
  • an effective style
  • These factors can provide for PATIENT SATISFACTION WITH CARE which leads to better ADHERENCE TO TREATMENT.

  • When better ADHERENCE TO TREATMENT combines with PATIENT SATISFACTION WITH CARE, this often promotes IMPROVED HEALTH with a BETTER QUALITY OF LIFE.

    BOTTOMLINE: The adherence to a treatment plan by a patient and the success of the treatment can be greatly impacted by the patient-physician relationship. 

  • Source: Understanding Rheumatoid Arthritis by Stanton Newman, Ray Fitzpatrick, Tracey A. Revenson, Suzanne Skevington, and Gareth Williams
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